DISCLAIMER:

DISCLAIMER: I reserve the right to curse on this blog. If you are offended, too f$%&ing bad. As a result, content might not be appropriate for small children.

Also, my spelling is terrible ... even with spell check. I apologize in advance for any errers.






Friday, March 15, 2013

Isn't Cancer Enough? Skunks too?!?

This story dates back three weeks now ... but the odor of skunk still lingers at Casa Cooke ... and the pictures are too funny not to share.

We've had a dog for 8 years now. We live in the woods. In all that time, K-9 and skunk have never tussled ... until now. Molly (the Terrorist) Maguire Cooke and Pepe Le Pew had it out - big time!







 




   VS.













It didn't take long for us to figure out we'd been hit. And I mean WE - this might have "happened" to Molly, but we've all been suffering for it! It was 8:30 at night and we hear Miss Molly barrelling up the stairs. The dogs have a doggie door downstairs where they come and go as they please. Well, this night, Molly wanted inside in a bad way. On the way up the stairs, she's stumbling and making a racket. Plus, she's sneezing like crazy. Skunk in the nose. She was sneezing skunk spray out of her nostrils, all over my walls. Molly quickly reached the top of the stairs and Chris and I still didn't understand what her malfunction was.

That's when Molly ran into the den and promptly wiped her face on the Oriental rug, back and forth on either side of her snout, as if she had an itch she couldn't scratch. Instead, she was trying to abate the skunk spray all over her face. Then she ran to the second Oriental rug and did the same thing. Rub, rub, rub. I'm sitting at the kitchen table, Chris is in his chair. We're watching this whole spectacle with wide eyes. Then we look at each other, ready to laugh at Molly's bizarre behavior when it hits us - the smell. More than hit my nostrils, it hit my eyes. Burned my eyes and my lungs. But I was surprised at how much my eyes hurt (my eyeballs!!). Instantly we knew we were hit. Chris reacted with lightening speed, turning on his heel, opening the sliding glass door and ushering Molly outside onto the porch. Thank God. The 13 seconds she spent in the house would cost us $500 in carpet cleaning fees. I can't imagine what would have happened if she lingered inside any longer.
 
(Side note: I understand it's not politically correct to call Asian people Oriental. I did it once and some concerned adult scolded me and explained, "Only rugs are Oriental. People are Asian." She said I wouldn't want to anger any Asians by misnaming them. I've been sure not to make that mistake since. But this incident got me thinking, it is the same with rugs? What if I called Certified Carpet and said I had two Asian Rugs that I needed to be cleaned? Do you think the carpets would be offended? Would they roll-up in protest of being called Asian, rather than Oriental? I don't know. But I like these rugs and with the skunk incident, they've been through a lot already. So I don't think I'll test my theory. These are the thought I have while I'm in the shower. Weird.)
 
Anyway ... We'd been skunked. Of course, Barlie wasn't skunked directly, but her fur was definitely guilty by association. Only the girls will know what happened out there in the woods of Cooke Corner. All the people knew was that they stunk to high heavens.
 
I said we should bring them to the Dog Wash place. Chris looked at his watch, noted it was 8:30 pm and that the Dog Wash placed probably closed in a half hour. He also may or may not have mentioned that he had 3 beers and was too tipsy to drive ... or care that much at that moment. His solution: lock the dogs outside for the night.
 
I played along with that plan until about midnight. We had been in bed for about an hour. The dogs had been outside for about 4 hours. These are not Outside Dogs. They are Inside, Sleep in Your Bed Dogs. They sometimes camp out over night in an indoor/outdoor kennel when we travel to Blooming Grove. But that's also at the height of summer. Say 70 degree nights. While Chris gently snored, sleeping fine after locking his daughters outside, I quietly hit the Weather Channel App on my I-pad and tried to shield the light of the computer from Chris' eyes. It was 29 degrees. I crept out of bed, tip toed to the back door and let the girls inside. I could tell it was cold because my bare feet were freezing on the flagstone, my ball head was catching a chill and the water bowl I set outside for the dogs had just the thinnest layer of ice on it. I backed into the house, carrying the ice-cold water bowl, closed the laundry room door and cordoned off the dogs in the only space acceptable for them to stay while still "skunked." They weren't thrilled about not having the run of the house, but the laundry room was better than outside or the garage. I slipped back into bed, laid my cold head on the pillow and look over at my husband: still sound asleep. I set my alarm for 5:00am. I would wake up before Chris and let the dogs back outside, making it look like they spent the whole night out there. I took a deep breath and thought, "Geez God. They say You never give anyone more than they can handle. But cancer AND skunks. I really think we're pushing it!"
 
Promptly at 5, I woke up and sent the girls outside. Chris woke up at 6 and noticed the girls on the front porch and remarked that they had survived the night. Sure, as far as he knows. The best part about this post is Chris will never read it. He doesn't read the blog. He has no idea what I write here. So it's our little secret, okay? ;-)
 
The next day, AJ graciously drops off a dog cleaning solution. I scrub the girls down with his recipe. I leave them drying outside. They are shivering. When Chris gets home, we take them to the Dog Wash for Bath #2. This is in Kendig Square. There's a new pet shop. Ironically, Chris and I had visited the shop the week before, just to see what they had. At that visit, I had noted the large baths in the back of the store. The clerk said, "It's the Dog Wash. It's only $10." I was like, wow - that's great! Picking up on my enthusiasm, he let me know it was self-serve. Oh, I said, I get it, no wonder it's only $10, you're doing all the scrubbing yourself.
 
Well that what we did two weeks later. Scrubbed the dogs ourselves. We were a sight for sore eyes. Chris and I in our rubber aprons. The dogs miserable being washed twice in the same day. Customers came through and commented on our plight. We must have looked pathetic. Me, bald, with my apron on, sleeved rolled up, yellow kitchen gloves on, shampooing a miserable creature. Onlookers offered their condolences on our being skunked. Everyone said you should use Tomato Juice. This is also what I had been saying since they got sprayed. But instead we opted for the Nature's Miracle Skunk Deodorizer that the store sold. The only miracle was that I didn't flip out when we got to register and found out the solution was like $22. Tomato juice is like $1.49.
 
I took these pictures to mark the occasion:
 
Chris seems kinda into it. Molly's is cursing the skunk.

 
Most of the stink was concentrated around the ear and head region. Gotta really get in those ears.

 
Not at all Molly's idea of a fun Friday night.

 
Barlie put on a good show. Didn't mind the shampoo but really hated the blow dry.
 
It's been three weeks. We now refer to Molly as Stinkus Face. If you kiss her on the head like this you will still get a whiff.
 
It's amazing what you do for creatures when you love them. I guess that's why Chris still puts up with me!

 

Tuesday, March 12, 2013

All Clear

Every single test was negative. Thank you God.
I felt stressed and anxious last week. However, all the emotions were worth it in the end to hear that there is no cancer in my brain. Plus, the imaging showed no cancer at all - which is simply because the little bit I have left is too small to see. I think that's a good thing - better than finding a big old tumor somewhere we weren't expecting. And it just confirms that we are dealing with microscopic cells. We just have to get rid of them.

Mommy was so helpful and reassuring. She laughed when I made jokes, cried with me when I cried. She drove me all over Lancaster even though she didn't know exactly where she was going. She did the laundry, cooked all the meals and (as only mom's can do) kept demanding that I lay down. So I did.

The Spinal Tap itself was fine. I was so worked up I was crying in the procedure room. The young, beautiful girl who was the radiologist's tech was like, "Are you ok?" I said I was nervous and that I hate pain and didn't want it to hurt too much. She reassured me saying she sees so many of these, they barely hurt and I would be fine. I thought - of course that's what you say. What were her other options while I was sobbing on the procedure table? "This test sucks, hurts like a bitch and the guy might fuck it up and paralyze you." That answer wasn't likely.

Still, she was right. It was totally fine. I had to lay on my belly. He numbed my lower back up. They say, "A little pinch then a burn." And it burns alright. But I get stuck by needles so often now, and most injections burn as they push the meds in, that "pinch and burn" is nothing. The funniest part to me was the use of good old gravity to deliver as much spinal fluid as necessary. The table I was laying on actually tips up and has a foot plate on the bottom. So once the needle was in they tipped the table so I was practically standing up. That helps the spinal fluid drain out. Fancy that.

When it was done, I felt stupid for crying. The pretty girl even said to me "That wasn't so bad, right?" I had to agree with her. Bitch. Just kidding. They wheeled me back upstairs and the first thing I said to my Mom was "Piece of cake." She was so relieved.

Now there's this thing called the Spinal Headache. I heard about it from other people. It was supposed to be excruciating. Someone said to me, if you drink a lot of fluids it helps the body replenish the spinal fluid they took out and you can avoid this dreaded headache. So I'm sucking down water, soda, whatever - as much as I can. They also make you lay perfectly flat for two hours after the procedure so your body can heal the hole in your back and keep the spinal fluid from leaking out. I do as the doctor orders.

Thursday night, find. I lay flat the whole rest of the night. Friday, a little achy. Trying to lay mostly flat. Friday night, not good. Bad upper back pain - like shooting pain and a little head throbbing. My mom is feeding me ibuprofen like it's candy. Saturday, I feel like death. Sitting up eating breakfast, I think being stabbed would probably feel better than I felt then. Head is throbbing, my back is still causing shooting pains. This is not right, not norma. Now, my mom is leaving Saturday morning. My husband is seeing all the classic signs of a Spinal Headache. Mom's wheeling her suitcase out to the driver to take her to the airport. Chris is loading me in the car to take me to the hospital.

I needed a Blood Patch. You cannot make this shit up. I live with a physician and stealing Katie's line, "I'm only like 5 or 6 years away from my medical degree at this point," and I have never heard of a Blood Patch. Basically, it's ANOTHER Spinal Tap, then they take your own blood, inject it in your back and it plugs the hole where spinal fluid is leaking out. The first thing I say is, "But my back is not wet. I don't think there's spinal fluid leaking out." Ok, so I'm still a medical school freshman for sure, because they laugh at me and say no - it doesn't actually leak out of your body, is just leaks out of the derma into the other tissue nearby. So I don't know if my gallbladder got some extra spinal fluid this weekend, all I know is it hurt.

The anesthesiologist runs through the risks and glazes over possible loss of the use of your legs as if it was just another side effect they mention during a Cialis commercial (if you have an erection lasting more than 4 hours you should see your doctor - no shit!) So my ears perked up at "loss of the use of your legs" and I stopped her there. She said, yes, one of the risks is a small chance of paralysis with a Blood Patch. But without it, it could take up to two weeks for the Spinal Headache to go away. I was like - ok, my running days are over - paralysis would suck - but this headache will be the death of me anyway - so let's do this. Nothing like weighing the risk/reward ratio while your skull feels like it might split open.

This time I sit up and lean over, curving my back. The doctor performs a spinal tap for the second time in three days, Chris draws blood from my arm, she then shoots it in my back (which hurt like a bitch - like a lot a lot.) And then it was done. Thirty minutes later I felt like a new woman - and I could still feel my legs. I'd say that was a win/win. Plus with all negative test results, what's an extra Spinal Tap or two? I'll do anything to be cancer free.

Wednesday, March 6, 2013

Two Tests Down ... The Big One To Go

This is a big week and I've been a little stressed. Yet as my mother says, "Fearful anticipation is worse than realization." We have great results already. The MRI of the brain was negative - thank goodness. Plus, I also had the PET Scan today - it too showed nothing. I feel very relieved about that. We expected to see nothing, but it always feels good to get the confirmation. I've had both tests before so I knew what to expect - that always helps. Tomorrow is the Spinal Tap - or Lumbar Puncture as the real people call it. I have never had one of these and I'm a little scared. I'm afraid it might hurt and I'm afraid of a potential "spinal headache." I no control over any of these things so I'm just putting it in God's hands. And it will all be over by like 3 o'clock tomorrow. Just have to get to then. I can do that.

The hCG dropped. From 16 last week to 6.8 this week. Why does that happen? What is the rhyme or reason for the increase and decrease? I'm happy it went down, I'm just confused as to why sometimes it goes up and sometimes it goes down.

So many prayers, so many extra masses, so many candles lit. I can't tell you how many people have gone above and beyond for me this week. Thank you. The notes and prayers and love keep me from spinning out of control.

More tomorrow...

Wednesday, February 27, 2013

UGGGGGGHHHHHHH!

I have several funny things to blog about. And now I can't. I have to postpone them. For the shitty stuff. It's okay to let the fun linger. But the important info (read: shitty stuff) must be posted in a timely fashion. Mainly because it means you have to ramp up the prayers. I promise to blog the funny stuff in a few days. For now though, here is the drama.

Beta hCG is now 16.2. Dr. Goldstein calls it "disappointing." He wrote that in an e-mail at 6:42am this morning. You know how e-mail is though. Disappointing. When it's typed out is so less dramatic than if we were in his office and he said something like, "Well, fuck-a-doodle-do. 16.2. Isn't that a bitch?" I'm sure that's what he meant when he typed disappointing.

WHY oh Why oh Why Why why why why does it keep going up and down?? Why? Why why why? And why can't we get it to stop going up and down ... and just get it to go down ... forever? That's the big question, isn't it? Do you know how many people have the answer to that question? None. Maddening. Absolutely maddening. Marsh says, "All to be revealed." It's just that nothing is being revealed today apparently. Maybe tomorrow is the revealing day. I'm not holding my breath, otherwise I'd be blue by now. So just like right foot, left foot - I inhale and exhale and pray for all to be revealed ... someday.

Plan:

Next week:
  • PET scan to see if you can see cancer
    • Dr. Evans says she is certain this will show nothing. Cancer is at cellular level. Too small to see on PET.
  • MRI of brain
    • Because PET scan doesn't include brain. Dr. Evans is sure this also will show nothing, because cancer would be too small to pick up on MRI
  • Spinal Tap
    • Other than the movie "This is Spinal Tap" I really knew nothing about what this actually does. I did hear it was painful but everyone I spoke with today said, oh it's not that bad. Read: hurts like a motherfucker but you forget that it hurt that much
    • During tap they put a needle into your lower spine and remove CSF cells - Cerebral Spinal Fluid. This is brain fluid that also flows along the spinal column, I guess. It would have cancer cells in it, if there's cancer in the brain.
    • Dr. Evans is also convinced this will show nothing.
    • So why are we doing all these "show nothing" tests?? Because we're switching chemo again. A switch time is always a good time to get some new baseline tests. Just make sure you are crossing your t's and dotting i's before you jump ship to something else.
Two Weeks from now:
  • New Chemo
    • Shocker. This last one didn't even last a month before we figured out it was useless.
    • New drugs will give more side effects than the last round, but not as bad as the round before that. Is your head spinning yet? Because mine is - and that's not even one of the side effects.
    • It includes two days in the hospital. KILL ME NOW. I like the Chemo Lounge so much. Why can't I just stay in the Chemo Lounge? (Can you hear me really whining as I say that?? Whhhhhyyyyy?)
    • It's once every three weeks - that's a bonus. I've always been a chemo every week-er. I asked if I could go back to work a little bit on the two off-weeks. Dr. Evans said absolutely not. This is still "focus on getting rid of cancer" time, not "transitioning back to work time."
I've stopped crying. Partly because what's the point? Partly because my new anti-depressant really helps me mask my emotions. Kidding. I just sigh a lot. And roll my eyes. I'm like a teenager. Sighing, rolling my eyes and stamping off to my room (mainly for my daily nap.)

What else is there to do? Just pray.

Thursday, February 21, 2013

Ash Wednesday ... Again

You know you've had cancer too long when you start celebrating events for the second time around. With Groundhog Day Round 2 out of the way ... the next repeat was Ash Wednesday. Because Ash Wednesday is typically on a Wednesday ;-)  I had chemo this year and last year. If you remember, I missed the ashes part of Mass last year and had to beg Father Leo. This year Marcia and I snuck in ashes after bloodwork, before lunch and before chemo. We were so late to Mass we got there just in time for ashes. Then we were running late for lunch, so we ditched out just after Communion. It was definitely an abbreviated service for us. Marsh said God will forgive us. I like myself an Express Mass, so I was thrilled. Next year for Ash Wednesday, I will be cancer free and have a cute, probably still short haircut.
 
This year for Lent, I'm giving up Cancer. 
 
 
Last year's ashes.
This year.

3.1 - The Rollercoaster Continues

My emotions are directly related to this damn number. And because it went down to 3.1 this week ... I'm a happy kid!

I was able to get chemo this week. Five hours of drip at the Chemo Lounge is like a dream compared to the hospital. I feel like Marcia and I are light on our feet walking into the lounge. We don't have to be admitted, we don't have to carry overnight bags, we don't have to wait 4 hours to be hooked up to the drugs. We just sit and talk with the other women and hang out with Kristin. It's a good day.

The Boston doctor recommended I go back on birth control. I think I might be one of the only women without a uterus taking the pill. But he's trying to monitor other hormones. Ovulation includes two other hormones with "h" in them. We monitor hCG, but there's also Lh and Fsh. So being on birth control will shut those two down for a while. He just wants to make sure we're not picking up other "h" hormones instead of the hCG.

I'm feeling well. I could sleep forever. But that's the only major side effect right now. It's really a blessing. I had a pretty bad head cold over the weekend. But when I thought about it - other than cancer - I haven't been sick the whole year. So a little head cold was bound to sneak in.

I'm thrilled with this week's numbers and I hope next week's are even lower. Until then ...

Monday, February 18, 2013

A Waste of Weight Watchers

If you think cancer will make you skinny, you're wrong. One could only hope, right? At least there should be some up-side to chemotherapy and being hospitalized. I remember this from the first time I had cancer. I thought I would waste away. I was hoping at least ... like when the girls say in "A Devil Wears Prada" "I'm one stomach flu away from my goal weight!"

This is very distressing to me. I eat constantly. So that might be the problem. But also, I don't move that much. Also an issue. I understand basic weight loss: eat less, move more. It's just that doing that is near impossible right now. I get winded going up a flight of stairs and get hungry when I look at the outside of the refrigerator.

The steroids don't help. Moon face is the term they use. I have moon face, moon ass, moon arms, moon thighs, moon belly, moon back fat. Alas, I hark back to a time when I was thin. Upon meeting me one woman said about me once, "Of course she's skinny, she's 23. Weren't we all skinny when we were 23?" Touche. So I dug up this picture to make myself feel better and let people know I wasn't always a moon ... plus it's fun to show this circa 1996 pic off.


Thin, right? But like weirdly thin. Like "that girl should eat a burger" thin. People used to say my legs went all the way up. I didn't really get what they meant when I was 16, but looking at this picture I get it now. I think I was 16 or 17 in that photo. Oh, those were the days.

Fast forward: 


This is actually a terribly embarrassing picture to post. But I said I would share what was real and this is it. I'm glad the flash makes it at least a little harder to see. Mike Everhart reads the blog while he eats breakfast. I don't want him to throw up first thing in the morning. The legs don't go on forever - they just got wider. I took out my belly button ring long ago - it would have been swallowed by the rolls by now. The handles make it easier for Chris to love me, but harder to fit into jeans. I have as much arm flap as a middle school lunch lady serving Sloppy Joe's. The only upside I see is my boobs. I was as flat as a board growing up. But now, add 40 pounds and you get a bonus: boobs!  

I joined Weight Watchers just after that first surgery in September in Boston. I just finished "emotional eating" my way through Boston while I rested the week post-op. I thought I at least deserved that. Then I got on the wagon. Weight Watchers has an app (who doesn't now? I want the "Mer App") and it was almost fun to count points (for like 5 seconds.) Then I had the hysterectomy. Do you want to talk about emotional eating? Come sit down next to me and bring some chocolate chip cookies and milk and I'll tell you all about it. You only have one hysterectomy and it's not supposed to be at 32, so I didn't want to waste the opportunity! Mangia Mangia!

I cancelled the Weight Watcher subscription. Much like my Netflix, money was leaving my account each month and nothing was happening on my end. Might as well keep the money for pizza.  

I feel very un-pretty. Everyone will say, no, no, you're still pretty. blah, blah, blah. Save it. Don't send a single card that says I'm pretty. I'm just venting. But I have no hair and I weigh more than I ever have in my life. This is what cancer looks like for me. If I looked my prettiest ever during cancer that would be bad, right? So I'm saving my pretty for later. It'll come ... with some hair and some exercise. I will be healthy then too, so that glow of survival will certainly make my skin shine, right? Chris loves me, even like this. I love that I'm still alive. So that's really all that matters.

I got my inspiration for my self portrait from Demi. While she looks SMOKING HOT ... woman be crazy! But damn, crazy looks good, huh?