DISCLAIMER:

DISCLAIMER: I reserve the right to curse on this blog. If you are offended, too f$%&ing bad. As a result, content might not be appropriate for small children.

Also, my spelling is terrible ... even with spell check. I apologize in advance for any errers.






Thursday, July 5, 2012

I look like Rodney King

First, can you believe that Rodney King died?!? No one had heard a peep from that man since his 1991 beating and LA riots for years. Then he comes out with a book this spring?? THEN he ends up dead at the bottom of his swimming pool?? Weird.

Ok, so I don't look like Rodney. That's being a little dramatic. (Can you imagine? Moi? Dramatic?) But I'm seriously bruised. Everywhere. If you look at me to harshly, it leaves a bruise. If a fly lands on my leg, when he flies away ... it's purple. We have serious problems here!

Now, I'm sure there is a medical answer for this. Like my damn platelets are low and that ... blah blah blah. Or I'm on that blood thinner and that ... blah blah blah. All I know, is you could play connect the dots with the purple spots I'm rocking right now. Thankfully, I've been documenting them for your viewing pleasure. If you're traumatized by these photos, I understand and I apologize.

This one is from a wiffle ball. A fucking wiffle ball! The kids were playing on the beach. I was covering 3rd. Line drive straight to my leg. Whammo! Purple. (Plus I messed up the play so badly, the kid ran all the way home!) But wait, it gets better ...
This is from a ping pong ball. My leg looks like a tree trunk, I know. It's pasty white because I can't go in the sun and it's still flabby - despite cancer!! (If you can't drop a couple lbs during cancer there is no justice in this world!) My nephews are like Ping Pong champions. Susan Sarandon better watch out. If I put the Cooke boys on the circuit, they'll take down her players any time! So with three of them, I thought I would jump in as the 4th player at Marcia's Basement Table Tennis Lounge. It was good until I took a small plastic ball to the thigh. Really? A ping pong ball bruise?
You can almost see my crack in this one, but I wanted to give you just an idea of what the rest of my ass looks like. This splotch is because I walked into a banister but it has friends a little lower down. Both cheeks are covered with bruises from all the shots in my butt. Chris and Kristin have been having a grand old time with my tookus. The bruises there are varying shades of purple, yellow and green. At least we can tell which cheek we used last by the color palette.
And finally, this doosey. Frankie Brancaccio used to sing "She's got legs!" when I walked in the room. Now he would sing, "She's got some shit on her legs ... kinda looks like mold." This is simply from being a klutz. But when I knocked my knee it sent a zinger ... like with your funny bone when it zings down your arm. Except this shot down my leg. Can't be good. But if I want to remember exactly where to hit to make that happen, God left me a small indication. Thanks for that.



How can you be sad when you look at these faces?

I'm really tired of having cancer. Really tired. But there are some things in life that make me very happy. My niece and nephew, Hailey and William are two of them.    

If you will indulge me, you can check out this fun photo shoot we had at the beach last week.

The photographer, Stacey Fitzpatrick, lives and works in Lancaster. I've been admiring her photos for years. She also goes to Ocean City, NJ during the summer and met us there to take photos of the kids.

They are amazing. When I think Cancer Sucks, I then try to think The Kids Are Great! And these photos make me smile. The kids are so darn cute! And my husband isn't bad either! :-)

Go to:
-www.staceyfitzpatrick.com
-Click on the left box "Babies, Kids, Families and Beach"
-It will open up a new window, look to the bottom right.
-Click on "Proofing"
-Put in the passwork: cooke (all lowercase) and hit submit.
-Turn your speakers up, there is great music to go along with the slideshow.

Thanks for letting me show them off! Enjoy!!

Now I'm Getting Bitchy

It's only because we're nearly done that I can cop an attitude. Last week was supposed to be the Cooke Cousin Reunion. We took a weeks vacation time planning to spend it in Aspen with 20 other Cooke/Murrays. Fly fishing, white water rafting, hiking ... all the stuff it's just too cold to do when you hit Aspen in the winter. Would have been great. But when the ring leader comes down with a bad bout of cancer, the plans go to shit. I cancel more vacations than I go on. And that's saying something, because I go on a lot of vacations.

So to salvage the week I made my husband take off, we hit the beach. Let's be honest: not a bad alternative. And we were able to get the Jorgensen Girls to stop by the beach for a bit, so that's an added bonus. But of course, the cancer gods deem chemo necessary. So we drive back to Lancaster, sit for 7 hours for the poison, sleep half of the next day, then try to resume the vacation. I was like a walking zombie on the beach. If you think hauling a cooler, beach chairs, the towels, sunscreen and an umbrella to keep me from burning up like a vampire in daylight is hard on a normal day ... try it after 7 hours of chemo. (I understand I'm complaining about being on the beach. But I believe my current situation allows a modicum of complaining.)

Fast forward to this week. Chemo was scheduled for Tuesday because of the July 4th holiday. Go for bloodwork. Guess what? No chemo. Too sick. Platelets are 20. My nose bleeds if there is a strong wind. Fuckers. Would have been nice to skip last week and go this week. But like all things cancer: YOU HAVE NO CONTROL. Even six months into this, that still seems to bother me. Won't it be a shame if I learn nothing from this illness?

Thanks to the low numbers, my mouth has exploded in sores. The people who don't know I'm going through chemo must think I have Herpes, Hep B and C and the HIV - that's how shitty my mouth looks. No, no, people; I wasn't making out with a homeless IV drug user. I just have cancer and this is how my body responds.

See ... I said I was getting bitchy. I'll go now and find my happy pills and take like 86 of them.

Thursday, June 28, 2012

I'm So Sleepy

This week went as planned. Fun sisters visit!! Playing with my niece and nephew. Decent blookwork - thank goodness. And a day's worth of chemo today. Kristin and Dr. Evans were kind enough to shift me a day, so I could enjoy my family for most of the week.

Taylor and William (2 1/2 years old) enjoying the beach!

Hailey (5 1/2 y.o.) laughing it up!

Tried to get a little portrait ... This is Hailey's Zombie look ... then ...

Two seconds later, they were wrestling!


Platelets were good, hCG is still below 2. White and Red blood cell are apparently the correct shades of white and red. We're plugging along! Chris was my Special Friend today because he is off this week. It was fun to have him with me ... although I sleep most of the 7 hours away. I talk in the beginning, start slurring, then I'm out. Today I was talking to Kristin - I felt like we had a lot to catch up on - and my teeth started chattering. (Keep in mind we're in a 93 degree heat wave!) But the drugs make me chatter and I can no longer form normal words. That's when you know it's time to sleep. I was a pretty bad drooler today too! I apologize now to whoever has to use the blanket I used today. Plus, Chris brought me treats: including nubby donuts, Pringles and buttered popcorn. Let's just say the Barcalounger I was in today looks like a toddler had a temper tantrum in it. Very crumby food to eat and I left crumbs!

Between all the kid's hugs and kisses and conversations like this:
 William: Aunt Mimi?
Mer: Yes, William?
William: Guess what?
Mer: What, kid?
William: I love you.)
(You just want to eat them up!!)
it was good food for the soul!

Keeping up with their energy and then adding hours of chemo to the mix has left me quite wiped. But the smiles and the hugs and fun memories and handsome Special Guest make it all worth living for.

Hopefully there are just a few more weeks of treatment! Keeping our fingers crossed.

Friday, June 22, 2012

Not the only TV Personality in the Family

My youngest sister Taylor and her children (currently residing in NC) are coming up to visit this weekend and I simply can't wait! Middle sister Ashley - the Florida one - will join us for a day or two also. So it is a Sister's Reunion. I haven't seen my 5 year old niece Hailey or 2 1/2 year old William since October. I'm anxious to catch up on all the things the Luna kids are into now!!

Didn't have to look far to catch up on what Taylor's been doing. She's the star of a new commercial for the vacation rental company she works for!! She looks amazing! Wanted to show her off a bit ...

Taylor's TV Debut

Nothing like reconnecting with family, sharing some good laughs and getting some good cuddling time in to make a cancer patient feel like all is right with the world. I can't wait!!

Thursday, June 21, 2012

Part 3: My Inspiration, Agnes

She was wonderful to me from day one. Agnes Piersol's story is one of continuous chemo and contsant smiles. She's helped me get through my illness and is an inspiration to everyone in that Chemo Lounge. I was honored to tell her story. But really, watch the clip and you realize she's telling her story: with grace and hope and clarity. I hope you enjoy watching it as much as I enjoy knowing her.

WGAL SERIES PART #3"
The Nut Lady; Agnes Piersol

What a Good Week of Chemo!

See, these are sentences you never think you'll say. But after months of this poison, you learn to appreciate the Good Chemo Weeks. This was one of them.

First, I could get chemo. Nothing like have a "chemo snow day" when it's 98 degrees outside. You want to get this stuff done now, so you don't have to make up a day in August (when it's 110 at this rate. I'm not a Al Gore fan, but after a no-snow winter and these sweltering temps, maybe he's onto something with whole "Global Warming" thing!)

Second, my numbers were good. I don't know which little part of my body makes those platelets. Yet, as soon as they are too low for chemo, that little platelet-making-machine seems to get to work. I went from 23 to 124 in a week. Now that's what I'm talking about.

We gave Marcia a break this week and great friends Angie Speitel and Joe Mitton served as Special Guests. It was packed on Wednesday. And you know me, with an audience and some funny stories before I get the benadryl, I had the room laughing. Who says you can't have fun at chemo? As soon as that drug kicks in though, I start slurring and have to take a nap. I haven't had drink since February, but that Benadryl makes you feel like your drunk. I'm not used to that feeling so early in the morning, but I can make anything fun.

We're looking at just a few more weeks of chemo. It would be great if we could get them in all in a row and just be done. But the chances of that are slim. Because I'm toward the end, now I'm getting really antsy. I just keep reminding myself: one step at a time, keep your eye on the prize.

Trying not to look too far down the road but ... we might opt for surgery post-chemo to remove this nasty little tumor in my uterus. I would hate to leave it in and have Cancer #3 a year from now. Although, the Boston doctor says that might not be necessary. So we are weighing the risk/reward of everything and I'm trying not to be too jealous of all the beautiful pregnant people with their cute growing tummies. All in good time. All in good time.